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Author Archives: admin
Beyond Palliative Care – Physical Therapy
Once Cindy struggled to walk, I requested that the VNA provide me instruction for physical therapy exercises to do with her. She receives these exercises to preserve the range of motion in her limbs 4-5 times a day, mostly from … Continue reading
Beyond Palliative Care – Feeding
Patients admitted into a hospice program have been diagnosed with a terminal illness. Palliative care to make the patient comfortable then replaces curative treatment. As we neared the time for Cindy to come off hospice, my efforts to maximize her … Continue reading
A Change is Gonna Come
“There have been times that I thought I couldn’t last for longBut now I think I’m able to carry onIt’s been a long, a long time comingBut I know a change is gonna come, oh yes it will.” A Change … Continue reading
Posted in Alzheimer's Love Story, Caregiver Journal, Live Fully
Tagged Alzheimer's Love Story, Caregiver Journal, Live Fully
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Emotional Decline – The Triumphs
Stages of Decline Outline: Final Installment Cindy and I agreed after her diagnosis to make our experiences public, hoping that our efforts to live well in the face of tragic adversity will benefit others. With that intention I conclude this … Continue reading
Emotional Decline – The Tribulations
Stages of Decline Outline: Eleventh Installment The totality of Cindy’s physical decline created some health and comfort problems for her care. Without any emotional or verbal feedback these Tribulations required guesswork that added to the Trials of her emotional decline. … Continue reading
Emotional Decline – The Trials
Stages of Decline Outline: Tenth Installment All previous stages of decline overlapped gradually with each other, not so with the final stage of emotional decline. In March of 2019 Cindy had her first ever and still most severe seizure. From … Continue reading
Physical Decline – The Triumphs
Stages of Decline Outline: Ninth Installment The lesson to be learned here is another life lesson which can be broadly applied. Perseverance and an active, positive social network are the keys to any kind of success, including caregiving. In particular, … Continue reading
Physical Decline – The Tribulations
Stages of Decline Series Outline: Eighth Installment Cindy’s steady physical decline correlated with ever changing conditions in other ways as well. Both Cindy as patient and myself as caregiver experienced added Tribulations tacked on to the Trials of her physical … Continue reading
Physical Decline – The Trials
Stages of Decline Series Outline: Seventh Installment Though we associate Alzheimer’s and dementia with cognitive decline, Cindy’s physical decline caused me greater sadness. Known as an Expedition Woman by her long distance hiking peers, and a woman with the best … Continue reading
Cognitive Decline – The Triumphs
Stages of Decline Series Outline: Sixth Installment. Once Cindy was officially diagnosed with Alzheimer’s we decided we would share our experiences on the Humanity Hiker blog. We faced the customary trials and tribulations of people with Alzheimer’s, but determined we … Continue reading